Huntington Society of Canada - Huntington Disease Resource Centre - Tarak Ahmed, Director, East Central Ontario

Organization:

Toll-Free:

1-800-998-7398 ext 207

Email:

Tahmed@huntingtonsociety.ca

Website:

www.huntingtonsociety.ca

Address:

Huntington Society of Canada
20 Erb St W, Suite 801
Waterloo, ON
N2L 1T2

Accessibility Notes:

Services provided virtually or any chosen location

Hours:

Mon-Fri 5pm-8pm

Public Contacts:

Tarak Ahmed - Resource Centre Director
*

Service Description:

Provides support to individuals with Huntington Disease (HD), persons at-risk, persons who are gene-positive, caregivers and family members, community members, friends and neighbours.

Services are provided virtually and throughout Durham Region and Peterborough area through a Resource Centre Director covering East Central Ontario and includes information and education, short-term counselling, resource counselling and referral, and individual advocacy.

Support groups are currently held in Ajax.

A virtual chapter of HSC called YPAHD (Young People Affected by Huntington Disease), provides a community and support network specifically for youth. A new mentorship program is now available to link youth, aged 12 and older, with a trained, volunteer mentor who understands the challenges of growing up in a family affected by HD.

Education and consultation is provided to health, social service and community workers involved in the care of an individual affected by Huntington Disease.

Call the national office to learn more about Huntington Disease clinical trials at 1 800 998 7398 or www.huntingtonsociety.ca

Meetings:

Monthly support meetings are facilitated by a social worker and are open to anyone affected by, or caring for someone with, Huntington Disease. To register, contact the Resource Centre Director at 1 800 998 7398 ext 207.

Annual fundraising walks are held in Peterborough and Durham Region during Huntington's month in May

Fees:

No fees

Application:

Languages:

English

Area Served:

Durham Region, City of Peterborough, Kawartha Lakes, Haliburton and Northumberland Regions.